WVDDC 5 Year State Plan Survey

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The WV Developmental Disabilities Council wants to hear from people with developmental disabilities, their families, and other important people in West Virginia as they start planning for the next 5-Year State Plan. The Council is gathering information from different places in the state, and this survey is one way to share your thoughts.

This survey is anonymous and private. It will take about 10 minutes to finish. If you have any questions or need help with the survey, you can call Katie Arbaugh at (304) 558-4185. Thank you for helping.

Which one best describes you? *

Person with a developmental disability (I/DD)

Family of a person with a developmental disability

Advocate (a person who receives money for helping others at a local, state, or federal level)

Provider (someone who works through an agency to provide support for a person with I/DD)

Other:

What areas do you think are most important for West Virginians with developmental disabilities? *

Special Education

Employment/Supported Employment

Access to Healthcare

Housing

Transportation

Quality Assurance (making sure people are getting what they need)/ Self-Advocacy

Childcare

Recreation

Supports for families including respite care

Supports through paid staff like Waiver agencies and direct support professionals

Difficulty with transitions of care and services (including school transitions or healthcare)

Other:

Required

What are the biggest barriers you or your family have with regards to the developmental disability? *

Lack of supports

Lack of respite care

Lack of quality of the supports provided

Lack of money

Not enough providers

Transportation

Not knowing what is available

Waitlists

No communication among service providers

Health and/or healthcare

Lack of advocates

Difficult paperwork

Lack of certified teachers and/or staff

Cultural barriers (language, religion, etc.)

Other:

Required

What services do you currently receive? *

SSI/SSDI Benefits

SNAP/Food Stamps/WIC

WV Birth to 3 (Early Intervention)

Special Education services (IEP)

Outpatient Therapy

Mental Health Services/Therapy

I/DD Waiver

TBI Waiver

CDCSP Medicaid Waiver

Aged/Disabled Waiver

Children with Special Healthcare Needs

Advocacy through an agency like Disability Rights of WV or Legal Aid of WV

Services through WVU CED (West Virginia University's Center for Excellence in Disabilities)

Other:

Required

Are there services/supports you or your family member want but cannot access? Tell us what they are and why you are not able to have them.

Ex. ABA Therapy, Transportation, 24 Hour Care

What else do you want to share about services and supports for people with developmental disabilities in the state of West Virginia?

What is the current living situation of you or the person with the developmental disability?

Lives with family/caregivers

Lives in own home alone or with supports

Lives in an agency staffed home with 0-2 people

Lives in an agency staffed home with 3 or more people

Specialized Family Care

Foster Care

Other:

Clear selection

In which county do you live? *

How would you describe the city/town where you live? *

Urban (more than 50,000 people in the city/town)

Rural (less than 50,000 people in the city/town)

What is the age of the person completing this survey? *

0-14

15-21

22-40

41-60

61+

What is your race/ethnicity? *

White/Caucasian

Black or African American

Hispanic or Latino

Asian or Asian American

American Indian or Alaska Native

Native Hawaiian/ Pacific Islander

Unknown

Prefer not to answer

Other:

What is your gender? *

Male

Female

Prefer not to answer

Anything else you would like to share?

Submit

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