Questionnaire for people with epilepsy aged 18 and over
I am, Tendai Rukasha, a Computer Science PhD candidate at Keele University researching wearable epilepsy monitors. I am supervised by Drs Sandra Woolley and Theocharis Kyriacou.

If you are a person with epilepsy, aged 18 or over, we would really like to know your opinions and any experiences of wearable and non-wearable monitoring devices or apps.

We would be grateful if you would complete this questionnaire. We are looking for your opinions and experiences - we are not asking you to take part in any trials. We welcome all opinions and please feel free to tell us of any experiences that inform your opinions.

The results of this questionnaire will be published and shared with Epilepsy Action. No identifying comments will be published and no quotes from responses will be used without permission. Full participant information details are available.

Note: You are welcome to complete more than one online questionnaire. For example, if you are a healthcare professional or carer who has epilepsy, you are welcome to fill out both applicable questionnaires.

Thank you very much for your help.

Tendai Rukasha (t.rukasha@keele.ac.uk).

                     
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ABOUT YOU AND YOUR EPILEPSY
1. Gender
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2. Age Range
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3. How long have you had epilepsy? (years).
4. What age were you when you received a formal diagnosis of epilepsy? (years).
5. Please comment on your fitness and general level of activity, e.g., “regular desk working with occasional walking and jogging” or “intermittent vigorous work and regular gym/football” or “regular moderate activity such as gardening and housework”.
6. What types of seizure have you had in the last 5 years? (Please select all that apply).
7. Broadly, please tell us about the seizures. How frequent are they and how long do they last? On average, how long does it take for full recovery from a seizure?
WEARABLE DEVICES OR APPS
8. Please tell us about any wearable epilepsy monitoring devices or apps and any other wearable activity monitoring devices (like Fitbits) that you CURRENTLY use.
9. If you are CURRENTLY using a wearable epilepsy monitoring device, please tell us why you chose it.
10. How many emergency contacts do you have? What is your relationship with them?
 11. Please tell us about any wearable epilepsy monitoring devices that you used IN THE PAST (i.e. devices that you no longer use). (If you haven’t previously used any devices please proceed to question 14).
12. How long did you use the wearable epilepsy monitoring devices or apps IN THE PAST?
13. Please tell us of any reason why you stopped using the devices or apps? (Please select all that apply).
14. We are particularly interested in false alarms. Please share any opinions or experiences you may have with false alarms.
15. In your opinion, what are the benefits of having your seizures monitored by wearable epilepsy monitoring devices or apps? (Please select all that apply).
NON-WEARABLE DEVICES
16. Please tell us about any non-wearable epilepsy monitoring devices (like mattress sensors) that you CURRENTLY use.
17. Please tell us your opinions and experiences from ANY PAST USE of non-wearable epilepsy monitoring devices.
POST-STUDY USABILITY QUESTIONNAIRE
18. If you have any experience of using a wearable epilepsy monitoring device or if you receive alarm/alert messages.
Please reflect on this use and complete this usability questionnaire, otherwise please go to question 19.
Overall I was satisfied with how easy was it to use epilepsy monitoring devices or apps.
Strongly Agree
Strongly Disagree
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It was simple to use epilepsy monitoring devices or apps.
Strongly Agree
Strongly Disagree
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I was able to complete the tasks quickly using epilepsy monitoring devices or apps.
Strongly Agree
Strongly Disagree
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I felt comfortable using epilepsy monitoring devices or apps.
Strongly Agree
Strongly Disagree
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It was easy to learn to use epilepsy monitoring devices or apps.
Strongly Agree
Strongly Disagree
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I believe I could become productive quickly using epilepsy monitoring devices or apps.
Strongly Agree
Strongly Disagree
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Epilepsy monitoring devices or apps gave error messages that clearly told me how to fix problems.
Strongly Agree
Strongly Disagree
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Whenever I made a mistake using epilepsy monitoring devices or apps, I could recover easily and quickly.
Strongly Agree
Strongly Disagree
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The information (such as online help, on-screen messages and other documentation) provided with epilepsy monitoring devices or apps was clear.
Strongly Agree
Strongly Disagree
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It was easy for me to find the information I needed.
Strongly Agree
Strongly Disagree
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The information was effective in helping me complete the tasks.
Strongly Agree
Strongly Disagree
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The organisation of information on the epilepsy monitoring devices or apps screens was clear.
Strongly Agree
Strongly Disagree
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The interface of epilepsy monitoring devices or apps was pleasant.
Strongly Agree
Strongly Disagree
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I liked using the interface of epilepsy monitoring devices or apps.
Strongly Agree
Strongly Disagree
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Epilepsy monitoring devices or apps have all the functions and capabilities I expect them to have.
Strongly Agree
Strongly Disagree
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Overall, I am satisfied with epilepsy monitoring devices or apps.
Strongly Agree
Strongly Disagree
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19. Are there are any comments or suggestions you would like to share with us about wearable and non-wearable epilepsy monitoring devices.
20. Permission to use quotes. We will never use any quotes from questionnaires unless we have your permission. Please indicate your preference below.
 I give permission to use quotes from my responses.
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THANK YOU VERY MUCH FOR YOUR TIME.
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