This is a sign-up form to be notified when the census platform is ready. This is NOT the census itself.

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This is a sign-up form to be notified when the census platform is ready. This is NOT the census itself.

This form is for you to sign up to receive notification when the Global Shwachman-Diamond Syndrome Census launches in late 2020. The information you submit with this form goes to the Shwachman-Diamond Syndrome Alliance, and will not be shared with any other organization. Thank you for your interest in this critical project. All-of-us count to make therapies and cures possible.

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