Feedback on Rare Disease Alert System (RDAS)

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OMB#: 0925-0648 Exp., date: 06/30/2024

Thank you for taking the time to help improve this website. Be assured that your responses will remain completely anonymous and will only be used for the purpose of improving the website.

1. Which of the following best describes you?

Patient

A patient’s caregiver/family member/friend

A genetic counselor or rare disease expert

Medical practitioner

Student

Other:

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2. What device did you use to view the RDAS website?

Mobile

Tablet

Desktop/Laptop

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3. Why did you visit the RDAS website today?

To better understand conditions or seek treatments

To collect information and resources

To keep up with the latest disease-related information

To find information for an assignment

Other:

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4. Have you found what you were looking for?

Yes

Partially

I was just browsing

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5. Please rate your user experience with RDAS website.

worst

best

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6. Please specify the reason behind your rating for #5.

7. Please rate how well the data is organized and presented on the RDAS
website?

worst

best

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8. Please specify the reason behind your rating for #7.

9. What other types of data you would like to see on the RDAS website in
the future?

10. What tools, other than RDAS, are you using to search for rare-
disease based information?

Reference

Public reporting burden for this collection of information is estimated to
average 5 minutes per response, including the time for reviewing
instructions, searching existing data sources, gathering and maintaining the
data needed, and completing and reviewing the collection of information. An
agency may not conduct or sponsor, and a person is not required to respond
to, a collection of information unless it displays a currently valid 0MB control
number. Send comments regarding this burden estimate or any other aspect
of this collection of information,
including suggestions for reducing this burden, to: NIH, Project Clearance
Branch, 6705 Rockledge Drive, MSC 7974, Bethesda, MD 20892-7974, ATTN:
PRA (0925-0648). Do not return the completed form to this address.

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