Questionnaire about people's cognition of endometriosis from different countries

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Hello there! We are the team representing the University of Paris-Saclay to participate in the iGEM competition. The International Genetically Engineered Machine competition is a worldwide synthetic biology competition. It aims to cultivate synthetic biology talents and promote the study, exchange and cooperation of different universities all over the world.

The teams are free to choose a project, which can build on previous projects or be new to iGEM. Successful projects produce cells that exhibit new and unusual properties by engineering sets of multiple genes together with mechanisms to regulate their expression. Our topic involves endometriosis. In order to better understand this, we designed this questionnaire about people's knowledge and understanding of the disease in different countries. This questionnaire is completely anonymous. All data is used for statistical analysis only for our team. Please feel free to fill it out. There is no right or wrong answer, please fill in your actual situation. The entire questionnaire will not take you too much time. Thank you very much for your help and cooperation! ;)

1. Where do you come from? (your country) *

2. Have you heard of Endometriosis before? *

Yes

3. Do you know what it is? *

Yes

4. If yes, what is it? (Please write a short sentence)

5. Is endometriosis well known in your country? *

Most of people in my country know about it.

Many people in my country know about it.

Some people know about it.

Few people know about it.

Not at all.

I don't know.

Are the women concerned with endometriosis perfectly treated in your country ? *

Women who have endometriosis are perfectly treated in my country.

Women who have endometriosis are well treated but there are still things to be improved.

Women who have endometriosis are badly treated in my county.

Women who have endometriosis in my country don't pay too much attention to it and therefore don't go to hospital.

I don't know.

Required

7. If women who have endometriosis are not perfectly treated, which areas still need improvement?

Self-check

Audience awareness

Treatment technics (For example: technics with less side effects...)

Social prejudice (like shame to talk about endometriosis in public...)

Government subsidy (like treatment cost)

Other:

8. Can people talk about endometriosis freely in your country? *

Yes

I don't know.

9. If not, what reasons do you think make things difficult?

People don't quite know about this.

People think it's a shame to talk about it.

It's a religious taboo.

It's quite private.

Other:

Is Endometriosis studied at school in your country ? *

Yes

I don't know...

Do you know how much time does a woman has to wait until being diagnosed in your country ? *

Less than a year

Between 1 year and 7 years

More than 7 years

I have no idea.

Which diagnosis methods have you already heard about ? *

MRI

Echography

Laparoscopy

Laparotomy

Other:

Required

Have you already had a diagnosis for endometriosis ? *

Yes

I prefer not to answer.

If yes, which method was it and what would you improve ?

Which particularity of a diagnosis seems the most important for you ? *

A less invasive one.

One that could reduce the time of the diagnosis.

A cheaper one.

Other:

After this questionnaire are you interested to learn more about endometriosis? *

Yes

I don't know.

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