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Dravet Canada wants to promote research into Dravet spectrum disorders. We want to improve lives impacted by Dravet. We know you want the same. What do you need, that we might be able to help with?
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Would a national registry of Dravet patients  be useful to you? If yes, what information would you need included in it?
If a registry would be useful, would you be able to contribute to it? In what ways? Staff? Data? Funding? ...
What do you need most to continue with Dravet-related research? Equipment? Staff? Other research to be completed first? ...
What else should we be considering?
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