Call to Action Survey

Background: Autism Spectrum Disorder (ASD) and related intellectual and developmental disorders (I/DD) can severely impair a person’s communication abilities and social skills. ASD affects virtually all aspects of everyday functioning to some degree. Difficulties are seen in communication, social interaction, adaptive functioning, and self-care skills. Many people with ASD engage in behaviors that jeopardize their safety and health, i.e. self injury, pica (ingesting inedible items), elopement (running away), flopping (throwing themselves on the ground), aggression, sleep disorders, and severely restricted eating. Most people with autism have psychiatric symptoms that are separate from autism itself. About 70 percent "may have" another mental disorder and 40 percent "may have two or more" such disorders, according to the fifth edition of the American Psychiatric Association's Diagnostic and Statistical Manual of Mental Disorders, or DSM-5.

The Problem:  In Washington State, there is a large gap between the supply of Licensed mental health professionals and these services. None of the current medical/mental health education and training programs offer coursework in autism. There are very few mental health counselors, psychologists, psychiatrists or neurologists in the State that have the training or desire to work with teens and adults with ASD+I/DD around severe disruptive behavior, feeding disorders, Functional Life Skills, and of the handful that do are associated with pediatric programs ONLY. We cannot rely on pediatric education and training to design, implement, and oversee mental health services for a population of adolescents and adults in crisis that are often hard to discharge from Emergency Departments and involuntary placements.

Without active treatment, some clients develop or intensify aggressive, destructive, or self-injurious behaviors. Supported Living providers have terminated clients with significant behavioral challenges and abandoned them at hospitals. These vulnerable individuals, often a danger to themselves and others, then bounce between their family home (if they have one), temporary respite placements, hospital boarding, jail, or homelessness at great expense to our state, medical and mental health systems. The DD Ombudsman's Stuck in the Hospital report details this crisis, which is a direct result of the lack of timely active treatment that is presently only available in the state’s 4 residential habilitation institutions. 

Safe and stable healthcare and housing are  basic human rights for people with intellectual developmental disabilities (IDD) including autism.  

We need an adequate network of qualified mental health/behavioral health providers as well as Enhanced Behavior Support Homes (EBSH) in Washington State for our neighbors who have IDD and challenging behaviors. Our survey provides you with the opportunity to stay informed and participate in the process of innovative change.  

There are many opportunities to get involved with shaping public policies that support our loved ones throughout Washington State. Please take 5 minutes to let us know how you'd like to be involved. 
Email *
What is your first name? *
What is your last name? *
What best describes your role in the autism and/or IDD community?
Why are you interested in Enhanced Behavior Support  for persons with autism and/or IDD? Do you have other advocacy priorities you'd like to share with us?  *
What is your availability to participate in our campaign *
Please provide your city and zip code *
What is your legislative district? Please enter the number only. If you're not sure, you can easily find your legislative district with this district-finding-tool: https://app.leg.wa.gov/districtfinder/ *
Might you be able to contribute in any of the following ways? If so, please check all that apply to you. *
Required
Please describe your related profession or area(s) of expertise that you might be able to contribute to our efforts. *
Please share any further comments, ideas, or questions here:
Thank you for completing our survey!
If you have further comments or questions about our work, please contact GR@WashingtonAutismAdvocacy.org
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