2020 CTNNB1 Family Meet up

JavaScript isn't enabled in your browser, so this file can't be opened. Enable and reload.

CTNNB1 Syndrome Awareness Worldwide (CSAW) and Advancing CTNNB1 Cures and Treatments (ACCT) together are organizing a meet up for our families to meet one another and hear from our researchers. This is just an initial survey to act as a "Save the Date," and to gather and provide information to help us with planning purposes. More details and information will be provided in the future.

Email *

CTNNB1

Your name (Please fill out one survey per family to give an accurate count.) *

Where are you from? *

Are you and your family interested in attending the CTNNB1 family meet up in New York, USA? It will be held at Columbia University on July 25, 2020. *

Yes

Maybe

Mark all that apply. (Adult attendance) *

I will be attending alone.

I will be attending with my spouse or significant other.

I would like to invite another family member or friend to attend.

I would like to invite a medical professional.

Other:

Required

Children are welcome to attend. We will provide daycare during the presentations. Would you need daycare provided for your child? *

Yes

If you answered "yes" above, how many children would you need daycare for?

1 child

2 children

3 children

4 children

Other:

Clear selection

A block of rooms will be reserved at a nearby hotel, will you need a room? *

Yes

Dr. Wendy Chung of Columbia University, will speak about the next steps in our research and more about the Natural History Study. Are you interested in hearing Dr. Chung speak? *

Yes

Maybe

Dr. Jacobs of Tufts University, who is currently leading the research studying CTNNB1 in mouse models will be able to give us updates on her findings. Would you be interested in hearing Dr. Jacobs speak? *

Yes

Maybe

Dr. Laura E. Marshak, Licensed Psychologist, specialty has been working with couples and single parents raising children with disabilities. Would you be interested in hearing Dr. Marshak speak? https://www.disabilityandfamilybalance.com/ *

Yes

Maybe

Friday evening, July 24th, there will be a meet and greet for our families to get acquainted with one another. Are you interested in attending? *

Yes

Maybe

Sunday, July 26th, there will be an informal get together at a nearby location for all our CTNNB1 families to get together and mingle. Are you interested in attending? *

Yes

Maybe

Please leave any questions, comments, or suggestions below.

Submit

Clear form

Never submit passwords through Google Forms.

This form was created inside of ctnnb1.org. Report Abuse

Forms