This questionnaire has been created to gather information from those families and individuals who are willing to participate in the Registry for Hereditary Spastic Paraplegia 15 (SPG15) and Hereditary Spastic Paraplegia 11 (SPG11).

By answering the questions in the following pages, you agree to the information being added to the registry.
For a more detailed explanation a consent policy can be found on The Maddi Foundation website by clicking the visiting https://themaddifoundation.com/consent-global-patient-reported-registry/

If you are unsure of any questions, please leave them blank and we can follow up at a later date if necessary.

If you have any questions relating to the registry, please contact us at info@themaddifoundation.com