STXBP1 Foundation has partnered with UCB and more than 10 rare epilepsy advocacy groups on three special kits just for rare epilepsy families based on research, expertise, and community input. Complete this form to order yours today!
For an STXBP1 sibling to receive a VIP Kit or a Parent to receive a Resource Kit, a parent must be a member of the STXBP1 Contact list and live in the United States. If you are not yet registered in the STXBP1 Contact List, please register here: https://www.stxbp1disorders.org/contact-list.