Hi, Scott here.
Fill out the questions below in as much or as little detail as you want, or are able for. Also, just skip any questions you don't want to answer. Also, if you feel that a call would be better email me and we can get something set up.
The aim is to better understand the influence that your life experience prior to diagnosis on how you relate to and manage EDS as well as trying to get a better understanding of how you view your ability to function in life with EDS and how that has changed over time.
I am using diagnosis as a landmark event that we all share, but if you'd prefer you can think of it as when things started to go wrong for you.
To clarify. I am using EDS as a label to keep things simple but I am including Ehlers-Danlos Syndromes and Hypermobility Spectrum Disorders in the discussion.
All responses will remain confidential and will not be shared publicly without prior permission.
Any questions or problems, email me scottorrance@gmail.com
