If you live with LGMD type 2A, 2C, 2D, 2E, 2F, or 2I, please use this form to submit comments that may be included in the EL-PFDD meeting and the Voice of the Patient post-meeting report. A parent, guardian, or caregiver may respond on behalf of the affected individual. Please respond as if you are the patient. If you are answering the questions on behalf of multiple individuals, please submit a form for each.

Your voice is critical to inform the development and review of new treatments for LGMD!

Join us live on Friday, September 23rd, 2022 from 10am - 3pm Eastern Time and MAKE YOUR VOICE HEARD by answering live polling questions, calling into the studio, and providing written statements.

Access the meeting at LGMDPFDD.com