International IBD Genetics Consortium Project Proposal Form 2021
IIBDGC Proposal Form – Version: 17 March 2022

The strength of the IIBDGC has been a result of its ability to bring together a large number of groups to work collaboratively on large-scale projects of importance to the IBD field.  One of the benefits of these collaborations has been the creation of large datasets, which can then be used to answer new questions.  Currently, there are two very large GWAS and Sequencing studies that are ongoing that are generating unique datasets. All member groups of our Consortium that have signed off on the IIBDGC MOU documents can have access to the datasets for IIBDGC Management Committee (MC)-approved projects. The purpose of the current proposal form is to encourage the development of analytic projects that can be carried out with these unique datasets, either to be included in the publications emanating from the “Parent GWAS and Sequencing studies” or to be included in “stand alone” publications.

We would like to encourage as many projects as possible with the hopes of harnessing the expertise and efforts of as many members as possible (students, fellows, analysts, clinicians, geneticists etc).  In an effort to promote transparency and collaboration, we would ask that members interested in leading a project please fill out the current Project Proposal Form.  Leaders of proposed projects that overlap will be asked to coordinate efforts.  Approved projects will result in the creation of Working Groups that are tasked with performing the approved analyses and to generate the MC-approved scientific outputs (manuscripts, abstracts, presentations, data products, reporting to MC). All IIBDGC members will be welcome to join in on an approved project and participate in Working Group activities.

As outlined in the IIBDGC MOU, the Consortium’s data is stored within the IIBDGC Data Commons. Groups with approved projects will be given access to the approved data via the IIBDGC Data Commons, with a project Workspace accessible to Working Group members designated to have access to data and that have signed on to the mandatory Data Management Plan. Please note that there will be no transfer of individual-level data to Working Group members or institutions.  

All research outputs need to appropriately recognize the contribution of the IIBDGC.  In terms of manuscripts, the use of individual-level data in all primary publications must include the IIBDGC and other constituent banners (Management Committee to confirm list) in the author list, whereas publications reporting on secondary use of data, only the IIBDGC banner is required but all relevant funding needs to be listed (Management Committee to confirm list).  If summary statistics alone are used, it is requested that the source of this data (mention IIBDGC and relevant publications) be clearly indicated with the “Materials” section of the paper, with mention of the www.ibdgenetics.org in the appropriate section of the manuscript.

Notes:
(1) Any new data generated by this project using IIBDGC resources (samples, study participants, funding, etc.) shall be returned to the IIBDGC at completion of project.  Specifically, the investigator(s) are required to provide the IIBDGC with data product(s) – raw and post-QC – of the entire data used to perform the study. The data products must be submitted to IIBDGC Data Commons prior to manuscript submission.

(2) No IIBDGC data can be shared with a third party unless indicated in this Proposal Form and approved by IIBDGC MC.

(3) Project Liaison must provide a brief written progress update every quarter (January 1st, April 1st, July 1st, October 1st) to contact@ibdgenetics.org and may be invited to present at selected IIBDGC MC meetings.

(4) The information that you provide for “Proposed Authorship” is meant to provide IIBDGC MC and IIBDGC members with a general idea.  Final approval will be required by MC prior to submission of abstract/manuscript.

(5) All projects must be carried out in accordance with the IIBDGC MOU 2018
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