Palliative care for adults in Aotearoa New Zealand - feedback
We would like to hear your thoughts about palliative care for adults (those aged over 24) in Aotearoa New Zealand, including the services provided by GPs, community services, aged residential care facilities, hospitals and hospices. Your feedback will help Health New Zealand | Te Whatu Ora (government health services) to know what's important to people as we begin our work to develop nationally consistent models of palliative and end-of-life care services. 

Your feedback is anonymous and will only be read by people that have been appointed to our Palliative Care Working Groups. The general themes from what people tell us will be shared more widely. 

We won't be able to contact you about anything you tell us in this feedback form, or share your feedback with other people or organisations on your behalf. If you’re unhappy about a health or disability service you or someone else has received, you have the right to complain to the Health and Disability Commissioner (www.hdc.org.nz). 

Anyone in Aotearoa New Zealand can fill in this feedback form until 31 May 2024. 

If you would like more information about our palliative care work programme and working groups, see our website https://www.tewhatuora.govt.nz/for-the-health-sector/specific-life-stage-health-information/palliative/  or email us at: palliativecare@tewhatuora.govt.nz   
  
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What type of feedback would you like to provide? *
Required
Where in Aotearoa New Zealand does your feedback relate to? *
Required
What type(s) of illness does your feedback mainly relate to? (You can tick multiple boxes) *
Required
Which ethnic group(s) do you identify with? (You can tick multiple boxes)
What do you think people receiving palliative care worry about?
1 = not worried about this   5 = very worried about this
1
2
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4
5
How long they have left to live
The costs of being unwell or having a funeral
What health problems their disease is likely to cause (eg pain)
Where they will be cared for
Where they will die
Who will provide the care they need
Getting the equipment they need (hospital bed, wheelchair etc)
Having their cultural, religious or personal beliefs valued and respected
Getting their affairs in order or resolving existing problems before they die
What help is available to support their family /whānau /aiga during the illness or after their death
Losing their dignity or experiencing suffering before they die
What support is available to help people cope with the psychological stress of illness, dying and bereavement
Will their family / whānau / aiga be ok after their death
Clear selection
Can you tell us what aspects of palliative care services are working well at the moment?
How satisfied are you with the current palliative care services available? *
Not satisfied
Very satisfied
Are whānau / families able to uphold tikanga and kawa / cultural processes and rituals that are important to them? 
No, not at all
Yes, all the time
Clear selection
Can you tell us what aspects of palliative care services aren't working well at the moment, or what is missing?
Can you tell us what you think needs changing or improving first (the most urgently)? 
Is there anything else you would like the adult palliative care working group to consider as they look at developing nationally consistent models of palliative care?  
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