One year after covid-19
People suffering from a chronic disease may have additional worries, fears and questions about their health with respect to general population. Starting from this consideration, and one year after the onset of covid-19 pandemic, we are carrying out an exploratory survey concerning people with hemophilia throughout the world in order to find out possible unmet needs or perceived shortcomings due to covid-19 in the quality of medical care services, the purpose being always improving PWH global assistance.
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1) Where do you live (country) ? *
2) How old are you? *
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3) Employment *
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4) Residence *
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5) Level of education *
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6) Your hemophilia is? *
7) Treatment regime *
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8) When you learnt of the covid pandemic, were you afraid that your haemophilic condition could somehow expose you to infection more than people without haemophilia? *
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9) Information provided by the Government, health and local authorities has… (multiple choice) *
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10) Many haemophilia dedicated websites published information and reassurances about haemophilia management during the covid-19 pandemic. Did they help you? (multiple choice) *
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11) Did you/do you need medical/psychological support to better address the current situation? If yes, who did you/would you contact? (multiple choice) *
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12) In your opinion, the current situation may have psychological consequences in the future, even when the pandemic will be over? *
13) During the last year, did you happen to experience particular sensations that worried you or made you feel uncomfortable? Do you recognise as yours one or more of the following fears? (multiple choice) *
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14) Did you find it difficult to manage the relationships with the professionals you need for your haemophilia? *
15) Which aspect of the current situation has the greatest impact on your health? *
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16) What kind of help do/did you need? (multiple choice) *
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17) Have the check-ups and the planned activities at your Haemophilia Center been affected by the pandemic? *
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18) Did you have COVID-19? *
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19. I agree to my answers being anonymously examined and the results used for scientific purposes *
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