Sibling Survey

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Sibling Survey

I am working on a research/writing project about siblings of individuals with disabilities. Thank you for your willingness to help me by completing this survey by Friday, January 13, 2023. Please answer the following questions to the best of your ability. No amount of detail is too much or too little. Appreciate your sharing perspective and experiences in whatever way you're most comfortable. All responses are completely anonymous, unless you choose to provide contact info at the end of the survey.

Please tell me a bit more about yourself (check all that apply) *

Older brother of an individual with a disability

Older sister of an individual with a disability

Younger brother of an individual with a disability

Younger sister of an individual with a disability

Oldest "child" in the family

Youngest "child" in the family

Only sibling to your brother/sister

Other:

Required

What is your sibling's diagnosed disability? *

In what ways has this disability most impacted your life?

What age are you?

What age is your sibling?

How close/far away do you live from your sibling? *

Does your sibling still live with his/her parents? If not, what is his/her living situation? *

Please describe the role you play in your sibling's day-to-day life and care. *

What role do you play in the long-term planning for your sibling? *

What are you most proud of as you reflect on these roles? *

How do you see these roles changing as you and your sibling age? *

Using the scale below, how comfortable are you with the responsibilities you have and will have for your sibling? *

Very comfortable/secure

Very uncomfortable/stressed

What do you think your family/parents did well to help you be the best sibling you can be? *

What do you wish they'd done differently? *

What are 1-2 important things you think siblings of individuals with disabilities need and/or need to know as they grow up? *

What are 1-2 things that you've needed the most help with over the years? *

Please use this space to share additional thoughts or feelings you have on this topic (What else would you like me to know? What else would you like to share to help me better understand your perspective and experiences?).

If you'd be willing to discuss this topic with me further, please provide your name and contact info below. NOTE: This is completely optional. Either way, thank you for your input.

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