KCNT1 siblings have a different childhood experience compared to their peers, and we recognize that they need support as well. They may be anxious about what their sibling is going through, have a hard time adapting to their changing routines, and they may feel neglected because their parent’s time is limited while caring for their KCNT1 warrior.
What can we do about it?We are offering new resources to support siblings and their families: Caregiver & Sibling VIP Kits!
Thanks to UCB, we are able to provide these resources absolutely free to families in our community. Read below about this resource and how these kits can be a valuable resource for KCNT1 siblings and caregivers. Follow the links to complete the order form & receive your kit!