Disability Benefits and Work Impact survey
About the Survey - 1 of 10

For a Word document version of this survey and questions in alternative formats, please click here.

This research is being conducted by WheelieQueer - a UK small business supporting disabled people with their disability benefits such as PIP who also provide LGBT+ inclusion training - in collaboration with the Wellcome Collection, a free museum and library that aims to challenge how we all think and feel about health. To visit WheelieQueer, click here. To visit Wellcome Collection, click here. We will publish a report using the aggregated results from this survey later in the year.

The closing date for this survey is January 28th 2024.

The survey explores themes that might impact or affect someone being able to work and be in receipt of disability benefits. We will collect information about your lived experience as a disabled person, its impact on your ability to work and your experience with the UK benefits system. Your responses will help us to shape our internal processes on how to support disabled collaborators in receipt of benefits.

There are 10 sections:
  1. About the Survey
  2. Eligibility 
  3. Consent 
  4. About You/Demographics      
  5. Disability and Care Responsibility    
  6. Work  
  7. Claiming Disability Benefits and Barriers
  8. Benefit Gateway Schemes
  9. Impact on work  
  10. Solutions and Beneficial Support Options
The survey should take you around 20-30 minutes of your time.

All your answers will be anonymous, and there is no obligation to provide any personal information.We cannot identify individual responses.
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Who can take part?
This survey is designed to be completed by anyone in receipt of disability benefits in the UK and over 16.  Please base your answers on your most recent benefits, even if you have been on benefits for a long time.  You must be currently working, have recently worked or plan to work as a freelancer/in self-employment — but the sector does not matter.
What about privacy and confidentiality?
Responses to the survey will be anonymous and will be stored securely on a password protected computer at WheelieQueer for 5 years. After this time, the data will be destroyed. Only the leads from WheelieQueer and Wellcome Collection on this project will have access to the data. The results of the study may be published but will not include identifiable information.
What if I have any questions?
If you have any questions about the survey, you can contact Jasper Williams by emailing wheeliequeer@gmail.com or Helen Wakely by emailing h.wakely@wellcome.org.

Please share the survey with your disabled friends and encourage them to participate too.

Thank you!
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