Share your experience of clinical trials

LUPUS UK are planning to develop a range of new information resources sharing the experiences of people who have participated in clinical trials and we want to hear from you! Share your experiences via this questionnaire and help us tell people what it’s like. All questions are optional.

You can find out more about what we're doing and why on our website HERE.

If you have any questions, or would prefer to share your experiences in a different way, please contact Michaella on Michaella@lupusuk.org.uk

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What made you decide to take part in a clinical trial?
What did you need to do as part of the trial? (Tick all that apply)
How did taking part in the trial impact your medical care, if at all? 
E.g., more appointments, seeing a new consultant or going to a new hospital, etc

How did taking part in a trial impact your personal life, if at all? 

E.g., your work life or social life.

Was the experience of taking part in the trial what you expected it to be? If not, what was different about it?

How did you feel taking part in the trial? Did this change during or afterwards from what you expected at the beginning?

What support did you receive during the trial? 

E.g. written information, a contact person, support from others outside of the trial, etc.

What happened after the end of the trial? 

E.g., you stopped taking the treatment or you started on an extension trial for the treatment, you were given information about the results, etc.

Anything else you’d like to tell us about what it was like taking part in a trial?

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