RESPONSIBILITIES & REQUIREMENTS
The FARA Ambassador Program is an ACTION program. Our main goals support FARA and the FA Community as a whole. As described above, there are numerous ways in which these goals are accomplished. Below are the responsibilities required of each member in the program:
- Attend monthly meetings. The FARA Ambassador Program meets on the first Thursday of each month via WebEx. Attendance is critical for group cohesion and basic organizational purposes. A large contributing factor to the effectiveness and success of this program is being present and active. Planning committees, roles and responsibilities for projects are determined at the meetings along with sharing of research updates and FARA news. It is necessary for members to have accurate and up-to-date information.
* If you are unable to attend a monthly meeting you must notify someone on the AP Leadership Team.
- Participation in Program projects.
+ Ambassador Blog
- Events (fundraising events, visits to FA research labs; Interviews (“Meet the Community”); Articles about living with FA
+ Card Writing
- Sending thank you notes to donors & organizers of FARA events
+ Speaking Team
- The Ambassador speaking team meets via webcam once a month to practice speaking and getting feedback on how to improve! Anyone can present their speech to the group and get a positive and encouraging evaluation. The goal is to get comfortable in front of others so we can be ready to represent FARA when the time comes.
+ FA Hangouts
- Safe place online to talk & share about important topics (e.g. job issues, romantic relationships). 18+
+ FA Teen Hangouts
- Safe place online to talk & share about important topics (e.g. job issues, romantic relationships). Teens only.
+ Social Media
- Take an active role in content creation and engagement for FARA’s social media accounts. This includes attending monthly social media meetings, participating in social media projects and campaigns (ex. rare disease day), and regularly engaging with FARA content (likes/comments etc.).
** Each project consists of at least two co-administrators and a committee. In addition to AP monthly meetings, project committees will meet separately as they see fit in order to plan and execute the projects.
- Willingness to reach out to the FA Community
- Submit your Ambassador bio to be published on the AP blog and be available to be contacted by FARA staff to connect with others with FA
- Attend local FARA events and write blog posts about the events you attended.
- Uphold the MISSION and VALUES of the FARA Ambassador Program