Open Data for Rare Diseases- Registration Form

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The DST-Center for Policy Research at IISc Bangalore invites you to join the discourse on the importance and nuances of Open Data for Rare disease treatment, management, and care.

Date: 25 February, 2021
Time: 6:30 - 8:30 pm IST
Venue: Online on Microsoft Office Teams

Kindly register for this event by providing your information in the form below.
We are committed to protect the data that you provide us. Your information is secure with us and will not be shared with any third-party.

For further queries, please contact Dr. Mohua Chakraborty Choudhury (mohuac@iisc.ac.in).

Email *

Name *

Phone Number

Organization *

Type of Organization *

Academic/Research Institution

Patient Advocacy Group

Private Sector Entity/Company

Healthcare Facility

Other Government Organization or Non-Government Organization

Other:

Required

Are you aware of Rare Diseases? *

Fully Aware

Moderately Aware

Heard of it

Never heard of it

Required

If aware of rare diseases, how did you get to know about it? *

I am a patient

I am a care giver

I am a patient advocate

I am a rare diseases researcher

I am involved in rare disease policy

I am a health worker

Someone in my family/friends have a rare disease

I am generally aware

Not Aware

Other:

Required

Are you willing to share your contact details for receiving communications from DST CPR, IISc Bangalore related to future events on rare disease? *

Yes

A copy of your responses will be emailed to the address you provided.

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