International Kawasaki Disease Symposium (IKDS) 2024 Patient/Caregiver Survey
Kawasaki Disease Canada and the Kawasaki Disease Foundation (U.S.) will be hosting a patient/caregiver workshop at the upcoming IKDS and want to know what you would like to learn about from the experts.  Kawasaki disease researchers and clinicians will be there to provide the latest research and answer your questions.

Please take a few minutes to fill out this brief survey.

We ask that you provide your name and email address so that we can keep you updated on the results of our survey and share news about the upcoming 2024 International Kawasaki Disease Symposium in Montreal, Quebec, Canada from August 26 - 29, 2024. (https://www.ikds.org/)
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Email *
Name  *
Tell us about yourself.  Are you: *
If you are a Kawasaki disease patient or caregiver, do you/the patient have coronary aneurysms?
Clear selection
Please tell us how interested you are in learning about the following topics at the International Kawasaki Disease Symposium.
Causes, occurrence, genetics *
Not at all
Slightly
Moderately
Very
Extremely
Research into causes of KD (etiology)
Research into the effects of KD on the body during the acute phase (pathogenesis)
Occurrence rates of KD around the world
Genetic factors associated with KD
Diagnosis and treatment *
Not at all
Slightly
Moderately
Very
Extremely
Advances in diagnostic tools
Treatment options for KD
Recovery and discharge *
Not at all
Slightly
Moderately
Very
Extremely
Issues to be aware of during recovery
Risk of recurrence
Vaccinations after KD
Cardiology *
Not at all
Slightly
Moderately
Very
Extremely
Long-term follow-up for patients without aneuryms
Long-term follow-up for patients with aneurysms
Cardiac imaging for KD patients
Cardiac interventions for KD patients
Hematology *
Not at all
Slightly
Moderately
Very
Extremely
Current anticoagulation therapies
Advances in anticoagulation therapies
Other health concerns possibly correlated to KD *
Not at all
Slightly
Moderately
Very
Extremely
Allergies, eczema, asthma
Rheumatological issues, such as joint pain, PANS
Neurodevelopmental and cognition
Psychological concerns *
Not at all
Slightly
Moderately
Very
Extremely
Parental psychological support
Patient psychological support
Behavioural issues after diagnosis
Transition to adult care *
Not at all
Slightly
Moderately
Very
Extremely
Recommendations for transition
How to find an adult cardiologist
Do you have any other topics that you would like to learn about?
Please share any specific questions you would like answered.
Are there any other comments you would like to share with us?
Location: city, country (optional)
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