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Communicating Medical Information to Children
Our goal is to build a website designed to help parents learn about conveying medical information to children. Listed below are some questions regarding topics that will potentially be included in our website. Please indicate your interest level in the following topics. We have also included some demographic questions to better understand the context of survey responses. If you are not comfortable with responding, please feel free to skip some or all of these questions.
For the purpose of this survey, we are defining illness as a chronic health condition that negatively impacts one’s daily function or quality of life.
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* Indicates required question
Are you a parent or guardian of a child?
*
Yes
No
If you are a parent or guardian, how old are your child(ren)?
*
0-2 Years Old
3-5 Years Old
6-8 Years Old
9-11 Years Old
12-14 Years Old
15-17 Years Old
18+ Years Old
I am not a parent or guardian
Required
Rank how knowledgeable you are about the following topics (1 being not at all and 5 being very knowledgeable)
*
1
2
3
4
5
How children’s age impacts their cognitive understanding of illness
How children’s age impacts their emotional reaction to illness
How children of different ages respond emotionally to their own illness diagnosis
How children of different ages respond emotionally to the illness diagnosis of a loved one
How children’s age impacts their cognitive understanding of death
How children’s age impacts their emotional reaction of death
How children of different ages respond emotionally to news of a loved one's death
1
2
3
4
5
How children’s age impacts their cognitive understanding of illness
How children’s age impacts their emotional reaction to illness
How children of different ages respond emotionally to their own illness diagnosis
How children of different ages respond emotionally to the illness diagnosis of a loved one
How children’s age impacts their cognitive understanding of death
How children’s age impacts their emotional reaction of death
How children of different ages respond emotionally to news of a loved one's death
Rank how comfortable you with the following (1 being not at all and 5 being very knowledgeable)
*
1
2
3
4
5
Talking with children about their own illness
Disclosing a child's illness diagnosis to them
Disclosing a loved one's illness diagnosis to them
Talking with children about a loved one's death
1
2
3
4
5
Talking with children about their own illness
Disclosing a child's illness diagnosis to them
Disclosing a loved one's illness diagnosis to them
Talking with children about a loved one's death
Indicate how much you agree with the following statement: It is important to include children in serious conversations about personal or familial health.
*
Strongly Agree
Agree
Neutral
Disagree
Strongly Disagree
On a scale of 1-5, 1 being not at all important and 5 being very important, how important is it for parents to engage children in conversation about difficult medical topics (e.g., chronic illness, terminal illnesses, death, etc.)
*
Not at all Important
1
2
3
4
5
Very Important
Rank your interest on a scale of 1-5, 1 being not at all interested and 5 being very interested.
*
1
2
3
4
5
Seeing resources to help parents discuss topics such as medical information, illness, and death (e.g., books, TV shows, movies, etc).
Learning about the role of medical practitioners in divulging medical information to children
1
2
3
4
5
Seeing resources to help parents discuss topics such as medical information, illness, and death (e.g., books, TV shows, movies, etc).
Learning about the role of medical practitioners in divulging medical information to children
If you are a parent or guardian, what is your child's experience with illness/death?
*
Personal Illness
Illness of a Parental Figure/Guardian
Illness of a Pet
Illness of a Friend
Death of a Pet
Death of a Family Member
Death of a Friend
No Experience
Other:
Required
What would you do if faced with the need to disclose a medical diagnosis about your health to your child?
*
Your answer
Have you encountered any books or media that would be helpful in discussing illness with children?
Your answer
Have you encountered any books or media that would be helpful in discussing death with children?
Your answer
What is your age?
18-24
25-34
35-44
45-54
55-64
65+
Prefer Not to Answer
Clear selection
Please Specify Your Race/Ethnicity
Caucasian
African-American
Latino or Hispanic
Asian
Native Hawaiian or Pacific
Native American
Two or More
Prefer not to Answer
Other:
Please Specify Your Gender Identity
Your answer
Please Specify Your Religion
Your answer
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