ENIGMA-Chronic Pain Data Query

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ENIGMA-Chronic Pain is a new working group within the Enhancing NeuroImaging Genetics through Meta-Analyses (ENIGMA; https://enigma.ini.usc.edu/) Consortium. Our call for participation is open and we look forward to welcoming new partners! This 3-minute form is to gather basic information about available data from cohorts that are interested in participating in ENIGMA-Chronic Pain.

The ENIGMA-Chronic Pain Working Group aims to bring together chronic pain research groups in order to mutualize neuroimaging and genetic databases towards large-scale studies on brain structure, function, neurophysiology and molecular underpinnings of chronic pain, and identify brain regions and networks involved in the neurobiology of chronic pain and investigate how these relate to genomic background.

If you can contribute more than one dataset, please fill in a separate poll for each of them.

Coordinators: Yann Quidé and Sylvia Gustin, NeuroRecovery Research Hub, School of Psychology, UNSW Sydney, Australia; Centre for Pain IMPACT, Neuroscience Research Australia, Sydney, Australia.

For more information, please contact us at y.quide@unsw.edu.au and s.gustin@unsw.edu.au.

Email *

Name of person submitting the form *

Cohort name *

Cohort PI name *

Cohort PI email *

Institution, Country *

Are you currently participating in an ENIGMA Working Group? If yes, which one(s)? *

What is the approximate number of healthy (pain-free) participants in your cohort?

What is the approximate number of participants with chronic pain in your cohort?

Please list all pain categories that apply to your dataset.

Examples: migraine, back pain, trigeminal neuralgia, burning mouth syndrome, spinal cord injury neuropathic pain, fibromyalgia, complex regional pain syndrome, temporomandibular disorder, arthritis, etc.

What type(s) of pain have you collected? Please list all that apply.

Examples: neuropathic pain, nociceptive pain, inflammatory pain, (dys)functional pain, etc.

What questionnaires measuring pain severity and/or duration have you collected? Please list the questionnaires in the section below.

Examples: Numeric Rating Scale (NRS), the Brief Pain Inventory - Short Form (BPI-sf), other.

What questionnaires measuring comorbid conditions have you collected? Please list the comorbid conditions and questionnaires used to assess them.

Examples: depressive symptoms using the Beck Depression Inventory (BDI), pain catastrophizing using the Pain Catastrophizing Scale (PCS), posttraumatic stress symptoms using the PTSD Checklist for DSM-5 (PCL-5), other.

Did you collect other physical information? Please list all that apply.

Examples: body-mass index, etc.

Did you also collect cognitive data? Please list the domains and tests used.

Examples: working memory, executive functions, social cognition, emotion processing, etc.

Which types of data have been collected for your cohort? Please select all that apply: *

Structural MRI

Diffusion MRI

Resting-state functional MRI

Task-based functional MRI

Spectroscopy data

Genetic data

Other:

Required

Sharing individual subject level data is NOT a requirement, but knowing if you can share them will help us determine the possibility of running pooled mega-analyses.

What type of de-identified data could you share? Please select all that apply.

Raw scans – this may be necessary if you are not in capacity to process, quality assess your data and run the required analyses at your site

Imaging outputs (e.g., .csv files with average ROI cortical thickness) – this may be necessary for some projects

Clinical information (e.g., item level scores, total scores)

Only summary statistics – you will perform all processing, quality assessment and analyses on your site, and share the outputs for meta-analyses

Other:

Add any comment/detail you would like to add relative to data sharing:

Add any other comments you would like to make about your cohort:

A copy of your responses will be emailed to the address you provided.

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