MS-Selfie Smouldering MS #3

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At the moment there is no standard terminology for describing the scenario of someone with MS who is NEDA-2 (no relapses and no activity on MRI) who is getting worse (overtly on the EDSS or covertly on other measures). Which term do you prefer?

What name do you prefer?

Smouldering MS

Progression independent of relapses (PIRA)

Non-relapsing SPMS

Inactive SPMS

Hidden SPMS

Hidden progression

Worsening MS

Silent progression

Festering MS

Other:

Clear selection

How would you describe your self?

Someone with MS

Family member or friend of someone with MS

Healthcare Professional

Pharmaceutical representative

Other:

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Where do you live (county or state and country)

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