ITAMA - Citizen Questionnaire
Coeliac Disease is a condition which occurs when people become allergic to a protein called gluten in their diet. Gluten damages the lining of their small intestine causing problems with the absorption of nutrients and vitamins. The treatment for this condition, is to remove all sources of gluten from the diet. It is estimated that the disease affects about 1 in 100 individuals; however, in most cases, it is misdiagnosed.

ITAMA (https://www.itamaproject.eu/) is a multidisciplinary project, aiming to verify the effectiveness of less invasive testing methods to diagnose CD especially in children of paediatric age. For this reason, one of the main activities of the project was to screen around 20,000 children in primary and middle schools of Malta.

Now that the testing phase is almost finished, ITAMA would like to know the public opinion about the project and the diagnosis method used during the study. We would like to invite all people (parents, educators, students, adults, young adults, youths) to take part in this short survey to help us decide a way forward.

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Do you suffer from coeliac disease? *
Do you suspect you might suffer from coeliac disease or a condition related to gluten intolerance, sensitivity or allergy? *
Is anyone in your immediate family (father/mother, brother/sister, wife/husband, child) diagnosed with coeliac disease, gluten intolerance, sensitivity or allergy? *
Does anyone in your immediate family (father/mother, brother/sister, wife/husband, child) suspect suffering from coeliac disease, gluten intolerance, sensitivity or allergy? *
In order to have a definitive coeliac disease diagnosis, would you: *
Not likely at all
Unlikely
Neutral
Likely
Extremely Likely
Undergo an invasive endoscopy/biopsy procedure at the outpatient clinic
Take a traditional blood test in a laboratory to have a definitive diagnosis
Answer to a simple and clinically tested questionnaire to assess probability, and if needed buy a simple, self-administered test needing just a single drop of blood (called POCT)
Would you rather fill such a coeliac disease questionnaire: *
If you could avoid invasive tests such as endoscopy or biopsy, how much would you pay for confirming the coeliac diagnosis reliably? *
How much would you pay to know whether your children or one of your relatives is likely to be coeliac, without the need for them to go through any invasive tests? *
What is your nationality? *
What is your age? *
What is your employment status? *
What kind of health coverage do you have? *
What is your education? *
What is your gender *
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