Dear Participant,
Thank you for taking part in this study.
This study is an initiative of the Hellenic Academy of Neuroimmunology (HEL.A.NI.) in collaboration with the Laboratory of Medical Physics of the Aristotle University of Thessaloniki (AUTH) in the frame of the international effort currently underway in order to capture the effects of the novel coronavirus (COVID-19) pandemic in people with Multiple Sclerosis (PwMS) and their caregivers.
This questionnaire is an adaptation from:
WHO Regional Office For Europe. (2020). COVID-19 Snapshot MOnitoring (COSMO Standard): Monitoring knowledge, risk perceptions, preventive behavior, and public trust in the current coronavirus outbreak - WHO standard protocol. PsychArchives. https://doi.org/10.23668/PSYCHARCHIVES.2782
This item is licensed under a Creative Commons License.
https://creativecommons.org/licenses/by-sa/4.0/

In order to register to the system as you will see below we require the submission of your email address. The reason for this information request is to ensure the reliability of the answers to the questionnaire and that the data entered into the system are not random. In essence, however, none of your personal data, general and sensitive, will be available to HELANI, as it will be anonymized to a following step (see next page), thus eventually making your participation anonymous.
The total time to complete the questionnaire is estimated to be about 60 minutes. For your convenience, we have divided the questionnaire into three parts:
Part 1: questions on general information and Multiple Sclerosis regarding you or the person with Multiple Sclerosis that you take care of (about 15 minutes)
Part 2: questions about your beliefs and your daily behaviors regarding the novel coronavirus COVID-19 (about 25 minutes).
Part 3: Questions concerning your beliefs regarding the novel coronavirus COVID-19 in relation to Multiple Sclerosis and the effect of the COVID-19 pandemic on the management of Multiple Sclerosis for you or for the person with Multiple Sclerosis that you take care of (20 minutes).
Each Part is submitted separately. Please do not begin with a Part unless you have enough time to complete it and also make sure that you press "Submit" at the end of each Part, as the system does not allow temporary storage and submission at a later time. Close other programs (eg chat or email) in order to avoid distraction.
It is necessary to complete all three Parties in order for us to take your answers into account and to draw conclusions.
The study is conducted to improve actions taken at a national level in response to the novel coronavirus pandemic in relation to MS, while at the same time it is expected to contribute to the World community's efforts to tackle the current and potential future pandemic more effectively.
Your answers will be used exclusively for scientific purposes and will help to improve the response of the scientific community against the novel coronavirus outbreak in relation to MS.
If you are having trouble handling your PC, please contact a caregiver / legal representative to fill out the questionnaire. In this case the filling should be done in real time, during which the caregiver will complete the answers you indicate. If the study is conducted through a caregiver / legal representative please state this in the appropriate field.
This is a non-commercial study for which no funding was received.


Further information:
1. The anonymized data will be stored permanently and published for possible later use by other scientists. Conclusions about your or other persons are not possible.
2. Your data will be treated in accordance to the regulations of the European Data Protection Regulation (GDPR EU).
3. Your participation in the study is voluntary and can be terminated at any time and without providing specific reason.
4. Your participation in the research does not expose you to any significant risk.

Why we collect and use your data
The study about the novel coronavirus (COVID-19) and is designed for People with Multiple Sclerosis (PwMS) and their caregivers. The anonymized data will be permanently stored and will be submitted to a Repository for future potential use by other researchers in the future.

There are no right or wrong answers, we are interested in recording your experience.
Thank you

How you can contact us
Hellenic Academy of Neuroimmunology
Politechniou 23, PC 54625,
Thessaloniki, Greece
Τelephone:+30 2313 050 426
info@helani.gr


If you would like more information on the processing of your personal data, click on the following link https://drive.google.com/open?id=1X3GYf5Yh7oJVvVQwmzWfQloK7tbGjlxx