At the
Global Liver Institute (GLI), our mission is to improve the lives of individuals and families impacted by liver disease through promoting innovation, encouraging collaboration, and scaling optimal approaches to help eradicate liver diseases. Within GLI, the Pediatrics and Rare Liver Disease Council actively contributes to this mission by spearheading initiatives and serving as vocal proponents for addressing rare liver diseases.
Our
Pediatrics and Rare Liver Disease Health Needs Survey aims to gather information and insight regarding the specific health needs and challenges faced by both children and adults with rare liver diseases. This survey is designed to provide us with valuable data to enhance the understanding of these conditions and improve the quality of care and support available to affected individuals and their families.
By participating, patients and families impacted by rare liver diseases have a unique opportunity to make meaningful contributions to the progression of knowledge, enhancement of healthcare services, and improvement of overall quality of life. We sincerely appreciate your time and dedicated responses.
