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What does an effective support group look like to you? Have your say!!
Please take a moment to complete the below feedback form. Your feedback will be used to help Hypersomnolence Australia develop meetings based on the needs of people living with Idiopathic Hypersomnia so that participants can find the support group meetings useful.
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Email
*
Your email
First Name
*
Your answer
Surname
*
Your answer
Preferred Name
Your answer
How old are you?
Choose
0 -18 years
19 - 25 years
26 - 35 years
36 - 50 years
50+ years
State/Country
*
Choose
New Zealand
Victoria
Queensland
Tasmania
New South Wales
Western Australia
Northern Territory
South Australia
Australian Capital Territory
How has Idiopathic Hypersomnia effected your life?
*
I have been diagnosed with Idiopathic Hypersomnia
I am a parent with a child under 18 years of age with Idiopathic Hypersomnia
I am a parent with an adult child with Idiopathic Hypersomnia
I have a loved one experiencing Idiopathic Hypersomnia
Other:
Are you a parent?
Yes, my children are still dependents
Yes, however my children are no longer dependents
No
Clear selection
Tell us a little bit about why you would like to attend support groups for Idiopathic Hypersomnia?
Your answer
What frequency are you likely to attend an IH support group?
*
Twice a month
Once a month
Once every two months
Other:
What is your 1st preference for the day/time a support meeting is held?
Please select the day and time that would best suit your availability to attend IH support groups. Please be aware there is no guarantee this can be accommodated.
Daytime (10am - 1pm)
Afternoon (1pm - 4pm)
Evening (5pm - 9pm)
Monday
Tuesday
Wednesday
Thursday
Friday
Saturday
Daytime (10am - 1pm)
Afternoon (1pm - 4pm)
Evening (5pm - 9pm)
Monday
Tuesday
Wednesday
Thursday
Friday
Saturday
What is your 2nd preference for the day/time a support meeting is held?
Please select the day and time that would best suit your availability to attend IH support groups. Please be aware there is no guarantee this can be accommodated.
Daytime (10am - 1pm)
Afternoon (1pm - 4pm)
Evening (5pm - 9pm)
Monday
Tuesday
Wednesday
Thursday
Friday
Saturday
Daytime (10am - 1pm)
Afternoon (1pm - 4pm)
Evening (5pm - 9pm)
Monday
Tuesday
Wednesday
Thursday
Friday
Saturday
What is your 3rd preference for the day/time a support meeting is held?
Please select the day and time that would best suit your availability to attend IH support groups. Please be aware there is no guarantee this can be accommodated.
Daytime (10am - 1pm)
Afternoon (1pm - 4pm)
Evening (5pm - 9pm)
Monday
Tuesday
Wednesday
Thursday
Friday
Saturday
Daytime (10am - 1pm)
Afternoon (1pm - 4pm)
Evening (5pm - 9pm)
Monday
Tuesday
Wednesday
Thursday
Friday
Saturday
What would you like the meetings to involve?
*
Please select all options that appeal to you. You can choose multiple options.
General support and discussion
Targeted meetings on specific challenges of living with IH (information and support provided by fellow IH sufferers)
Targeted meetings on specific topics - meetings to be attended by various allied health care and/or other professionals. Example topics: exercise physiology, nutrition, life coach, workplace laws etc
Information on recent research findings and what is happening in Australia
Organising and brainstorming further awareness and events to support IH
Other:
Required
We would like to arrange to have allied health care professionals (and other professionals if possible) attend some of our meetings. What topics would you like to see addressed? You can choose more than one.
*
Exercise physiologist - analyse their patients' fitness in order to help them improve their health and physical wellbeing.
Occupational therapists - can help people with chronic illness and disability develop, improve, as well as maintain the skills needed for every day living and working.
Life Coach - can help people make progress in their lives in order to attain greater fulfillment by improving their relationships, careers, and day-to-day lives.
Nutritionist - can help design, coordinate, implement and evaluate health interventions that are designed to improve health and wellbeing through food and nutrition.
NDIS community engagement officer - advice with regards to the NDIS
Advice with regards to workplace laws and accommodations
Advice with regards to student accommodations
I am not interested in meetings that are attended by allied health care or other professionals.
Other:
Required
Are you interested in participating in the planning and executing of events and awareness for IH?
Selecting yes does not mean you are committing to participate. By selecting an option you are helping to inform Hypersomnolence Australia how to tailor and develop support groups.
Yes
No
Maybe
Clear selection
Is there any other feedback or information you would like to provide to help support the development of IH support groups?
Your answer
Submit
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