Low Iodine Diet: patient survey 2023

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Most patients undergoing treatment for thyroid cancer in the UK are asked to follow a Low Iodine Diet (LID) in preparation for treatment with radioactive iodine. Sometimes patients who do not have thyroid cancer (e.g. Graves’s disease or a thyroid nodule) are also asked to follow the LID as part of their treatment.

Some people find that following the LID guidance they are given is straightforward. However, others find that the information they receive is not clear and feel that it contributes to their anxiety at an already anxious time.

We would love to know your views. Please answer the following questions and we will use your feedback to review the current guidance for the benefit of future patients.

Thank you very much answering these questions. Your feedback will help us improve the LID guidance for other patients.

Were you asked to follow a LID?

Yes

Clear selection

If you know this, which version of the LID did you follow?

The version with a traffic light system (3 categories: green, amber, red)

The version with 2 categories: eat/don't eat

Unsure

Clear selection

Did you choose to follow a LID even though your medical team did not require you to do this?

Yes

Clear selection

For how long were you asked to follow a LID?

less than one week

one week

two weeks

more than two weeks

Clear selection

Did the information you were given explain clearly why you were asked to follow a LID?

Yes

Clear selection

If you answered 'no' to the previous question please tell why.

Were you clear about which items you could and could not eat while following the LID?

Yes

Clear selection

If you answered 'no' to the previous question please tell why.

Did the information you were given cover everything you needed to help you follow a LID?

Yes

Clear selection

If you answered 'no' to the previous question please tell why.

If you were given them, did you find the LID menu suggestions helpful?

Yes

I was not given menu suggestions

Clear selection

Did you find anything in the leaflet confusing?

Yes

Clear selection

If you answered 'yes' to the previous question please tell us why.

Which other sources of information did you look at to understand more about following a LID? Please tick all that apply.

Patient support organisations

UK patient online forums

International online forums

Advice from friends and family

Google searches

I did not look at other information

If you had questions about the LID did you discuss them with your Cancer Nurse Specialist?

Yes

I was not able to

Clear selection

Please tell us about any other comments or suggestions you have about the LID.

Submit

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