2024 Virtual Advocacy/Speakers' Bureau Interest Form

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The National MPS Society is hosting a virtual Speakers' Bureau opportunity and would like to extend an invitation for all members to take part. Let your voice be heard by advocating for MPS and ML through video conferencing. Members are cordially invited to join us for a virtual speaking opportunity with representatives from Capitol Hill on Wednesday, May 15, 2024. Meetings will be scheduled in accordance with your time zone, and we will provide you with specific training, talking points, and support for the process. THANK YOU!

Email *

First Name *

Last Name *

Email *

Phone Number *

Street Address *

City *

State *

Zip Code *

Relationship to individual with MPS or ML *

Self (I have MPS/ML)

Parent

Grandparent

Sibling

Other Relative

Legal Guardian

Other:

MPS Type *

MPS I - Hurler, Hurler-Scheie, Scheie

MPS II - Hunter

MPS III - Sanfilippo (A, B, C, or D)

MPS IV - Morquio (A or B)

MPS VI - Maroteaux-Lamy

MPS VII - Sly

ML II, II/III, III - I/Cell, Pseudohurler Polydystrophy

N/A

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