Join the national MND Healthcare Research Community

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Join the national MND Healthcare Research Community

The UK MND Clinical Studies Group is the healthcare research arm of the UK Motor Neuron Disease Research Institute (UK MND RI), with researchers across the UK and patient advocacy groups working together to promote research to develop better treatments and care for people affected by MND.

Our group is keen to improve communications and collaborative working with the wider research community, including clinical research fellows, research nurses and all staff that support research delivery at sites across the UK; and also with healthcare professionals involved in delivering MND clinical care so that they can support and advise their patients about latest research developments and opportunities.

We invite all staff working on MND healthcare research projects and also healthcare professionals involved in MND clinical care within the UK to join our mailing list, to keep up-to-date with research developments and opportunities.

Please complete the form below to join the mailing list and receive newsletters and other updates. The information you provide will be used exclusively by the Clinical Studies Group to develop communications that best support the community. You can unsubscribe at any time by contacting stacy.young@sheffield.ac.uk

Please also forward this invitation to your colleagues who work in MND healthcare research or clinical care delivery.

More information about the UK MND Clinical Studies Group and Research Institute are available on our websites:

UK MND CSG: https://www.mndcsg.org.uk/

UK MND RI: https://ukmndri.org/

Email *

Full name *

Role *

Clinical Research Fellow / junior doctor

Consultant Neurologist

Research nurse

Clinical care nurse

Clinical trials assistant

Study coordinator / manager

Psychologist

Dietitian

Physiotherapist

Occupational therapist

Speech and language therapist

Patient advocacy group / charity organisation

Research support: NIHR, CRN/RDN, NHS R&D, etc.

Other:

What percentage of your role is dedicated to MND research? *

100%

50% - 99%

20 - 49%

Some research delivery but less than 20% of my role

No research element to my role

If your role isn't 100% MND research, what are the other aspects of your role? (tick all that apply) *

Not applicable (my role is 100% MND clinical research)

MND clinical care

Clinical research in another therapy area (specify below)

Clinical care in another therapy area (specify below)

Other:

Required

Site where you work (e.g. name of hospital & town/city). *

Level of experience in MND clinical research *

Less than 1 year

1-5 years

5-10 years

10+ years

Are you working on any MND clinical research studies at the moment? *

Yes

If yes, which studies are you currently working on?

You can use this space to make suggestions about what you would like to be included in the newsletters, or other ideas for how collaborative working across the MND clinical research community can be supported and encouraged nationally (optional)

I confirm that I am a member of staff working in MND clinical research or care delivery within the UK. *

Tick to confirm

Required

By ticking this box, you are signing up to receive newsletters and other updates relevant to the MND clinical research and care community from the UK MND Clinical Studies Group (UK MND CSG), which is part of the UK Motor Neuron Disease Research Institute (UK MND RI). *

Yes please, sign me up!

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Send me a copy of my responses.

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