The corona virus impact on your MPN life.

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Pandemic and your MPN life

Hi...I can't help but wonder if the COVID pandemic is seriously degrading our MPN healthcare?

For the upcoming TSR/MPNforum I’d like to share our experience with other MPN patients and healthcare professionals and see what we can do about it.. Thanjks , Zhen

Over the past two years have you postponed any doctor or hospital visits because of the pandemic?

Yes

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Are you monitoring your hemoglobin and platelet levels at about the same rate as in the pre-pandemic?

Yes

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Have you had a face-to-face consultation with your primary MPN healthcare provider in the past two years?

Yes

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If you 're getting regular phlebotomies or blood transfusions have you faced any difficulty or delays in completing the procedure as scheduled?

Yes

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Have you had a bone marrow biopsy or stem cell transplant consultation postponed due to the pandemic

Yes

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What impact has the pandemic had on your physical health?

1 = Minimal

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What impact has the pandemic had on your emotional and psychological well-being?

1- Minimal

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