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Nutrition and Body composition in CF
Please help CFReSHC pick the PTF's research priorities for nutrition and body composition in CF! This data will be presented to CFReSHC RAP group members and it will provided to you in our next newsletter.
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Please pick your top 3 priorities for further research on nutrition and body composition in CF
Should we be using BMI as a measuring tool or body composition? Body comp is measured during DEXA scan and measures density of tissue, bone, fat vs. muscle whereas BMi just measures weight/height.
How have eating habits changed being on modulators? (How have you changed your eating habits ….”
What does a healthy diet look like for people with CF?
How can CF care providers/social workers help CF patients with body dysmorphia for those who are underweight or overweight?
How does social/media pressure and similarly thin cohort influence CF women at different stages of their lives regarding body image? (skipping enzymes, CF belly)
What is the experience of menopausal weight gain in women with CF compared with general population and are their dietary changes that need to be made?
What pancreatic/gastric issues and food intolerances and allergies are related to CF?
Other:
Our next meeting will be held Thursday April 4th 1-3pm EST presented by Drs Sheila Mody and Emily Godfrey. They will discuss how to find a women’s health provider that meets your needs. Do you think you will be able to attend?
yes, definitely!
yes, but I don't know yet if I can make it
no, I'm not interested
I love this topic, but I sadly cannot make it
Clear selection
Did this PTF meet your expectations?
Yes
No
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Are you interested in continuing PTF meetings during the summer months?
Yes
No
Potentially, but I don't yet know my schedule
Clear selection
Are there any SRH topics we have not yet covered you would like to see discussed? Any you would like to repeat?
Your answer
What days and times work best for you for meetings?
Weekdays during the day
Weekday evenings
Saturday or Sunday afternoon
Sunday evening
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