Date: Thursday May 20, 2021
Time: 16.30-17.30 (CET)   //  10.30-11.30 am (EDT)

Patients as partners in research

Every year on May 20, we celebrate International Clinical Trials Day to mark the anniversary of the first randomized clinical trial in 1747. Much has happened in clinical research since then and we are still learning and developing.

Studies&Me invites you to celebrate patients and caregivers around the world who participate in clinical research. This year we focus on the new roles of patients and caregivers as partners in the planning, design and communication of clinical research - and we would love to have you joining the discussion.

Our speaker are:

Jen Horonjeff, PhD, is the Founder & CEO of Savvy Cooperative, and was named
one of the 50 Most Daring Entrepreneurs by Entrepreneur Magazine for her work at Savvy, the first patient-owned co-op that helps companies get input and insights from diverse patients. Jen grew up with juvenile idiopathic arthritis, survived a brain tumor, holds a PhD in Environmental Medicine, and is a health outcomes researcher, human factors engineer, and FDA advisor.

Danielle Drachmann is a mother of two children living with ketotic hypoglycemia.
She is the Founder & CEO of Ketotic Hypoglycemia International (KHI) for the advancement of research into the condition which is a medical mystery. KHI works closely with the Scientific Advisory Board on patient-initiated research, - a role model for how a patient organization and medical experts can work together.
Danielle Drachmann holds a Master in Anthropology of Health and works with the Danish Committee of Health Education. She is a patient representative at EURORDIS and EMA, and serves on the Committee for Telemedicine and Patient-Centered Care at the European Health Parliament.