IPTA Pediatric Transplantation Landscape

Child Organ Allocation Advocacy: An International Initiative

The International Pediatric Transplant Association (IPTA) believes it is important to represent the community of members, patients, and families it serves. By broadening the scope of advocacy, we promote the cause of children and young people who will benefit from transplants around the world.

 The International Advocacy group has been shedding light to the current landscape of pediatric transplant organ allocation. To date, pediatric patient wait list mortality continues to exist due to the persistent disparity between organ supply and demand.

Below is one of two questionnaires that aims to identify current pediatric transplant programs and allocation policies around the world. Once the first questionnaire is filed, a second short survey dedicated to your area of specialty will be forwarded.

Thank you for your participation in the IPTA. We invite you to read more about our initiative in our most recent publication on this topic at, https://onlinelibrary.wiley.com/doi/10.1111/petr.14317


Thank you!

The IPTA Advocacy working group

 

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Children's advocacy on organ allocation

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Participant's name

Participant's email

Job title

Up to what age are patients considered pediatric patients at your institution?

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Scope/ specialty of your practice. If applicable, please choose more than one: 

Country of practice: 

Hospital where you are currently practicing:

Physical address of the hospital/institution you are currently practicing:

Website link of the hospital/institution you are currently practicing:

Please share if applicable your transplant center's phone number including the country code:

 

Which organs are being transplanted in pediatric patients in your country? (Please check all that applies)

Is a specific pediatric organ transplant unavailable in your country of practice? 

If yes, please specify which organ, and in your opinion, the underlying barrier(s) for program development?

If pediatric patients are not being transplanted in your country, where are they referred to? (please note non applicable, if pediatric patients are being transplanted solely in your country)

Are pediatric transplants performed in the:

Do you consider transplant policies in your country to be transparent and accessible to the public?

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