Pericarditis Support Tool

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This is a short, 2-minute survey for people with recurrent pericarditis. The goal is to understand how people track symptoms, predict flares, and manage treatment. Your answers will help explore a potential solution to improve flare tracking. Thanks for your time!

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How long did it take you to get diagnosed?

Less than 6 months

6 months – 1 year

1 – 2 years

2 – 4 years

More than 4 years

Other:

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What are your first symptoms before a flare?

Headache

Throat soreness

Pain with deep breathing

Fatigue

Fever or chills

Increased heart rate

Other:

Do you track your symptoms?

Yes, I track them daily

Yes, but only when I feel bad

No, I just go off memory

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Have you noticed any patterns before a flare?

Yes, I can usually tell when it’s coming

Sometimes, but not always

No, it feels unpredictable

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What helps you prevent or manage a flare?

NSAIDs (ibuprofen, aspirin, etc.)

Colchicine

Prednisone

Biologics (Rilonacept, Anakinra, etc.)

Rest and reduced activity

Hydration

Other:

Would you use a tool that could predict pericarditis flares?

Yes, I would use it regularly

Maybe, if it was accurate

No, I wouldn’t find it useful

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What’s your biggest frustration with managing pericarditis?

(e.g., “Doctors don’t understand it,” “Insurance is a nightmare,” “I never know when a flare is coming”)

Would you be open to a follow-up chat?

Yes, I’d be open to sharing more (please leave email or Twitter handle below)

No, I’d rather not

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