Share Your Thoughts on a Non-Surgical VHL Treatment
As the potential of non-surgical treatments for VHL develop, it is important to learn your thoughts and concerns. Your input is essential for helping us improve care. Please take and a moment to complete this form.

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Contact Information
Providing your specific contact information (ie: Name, email, phone number) is optional, but it gives us an opportunity to follow up with you if we have any questions about your experience.
First & Last Name (optional)
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VHL Experience
How has VHL impacted your life?
What are the major problems with current treatment of VHL disease?
Would a non-surgical treatment for VHL be beneficial to you?
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How would a non-surgical treatment for VHL be beneficial to you?
If a non-surgical treatment for VHL was available, what inconveniences/side effects would you be willing to accept?
Would you agree to participate in a randomized placebo study of a drug that has been shown to shrink VHL tumors?
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