Neurodiversity @OpenScience
Increasing numbers of individuals, especially in the academic community, describe themselves as neurodiverse without further qualification for such a statement.

The extent of shared understanding of neurodiversity (vs. neurotypicality) remains limited. There is a need for a comprehensive lexicon of clear, well-defined terms of reference in this domain.

This form, initiated as part of an Open Science Project by the Center for Systems, Knowledge Representation and Neuroscience,  intends to gather initial expression of interest from peers (students, academics, researchers) in participating in a narrative collection on the issue of neurodiversity and recruit participants for a future autoethnographic study on the subject . The intent of this initiative is to gather and share knowledge from an autoethnographic perspective.

The underlying assumption that motivates this effort  that potentially everyone is  neurodiverse, i.e., most most individuals have their own behavioral and cognitive quirks,  define optimal cognitive states and mental  well being  according to their criteria and circumstances.

As such, this questionnaire seeks to get a sense of the range of definitions and characteristics, situations and stories surrounding neurodiversity.

Answers will be shared with all respondents. (Email addresses will not be divulged or shared). All respondents will be invited to attend one or more virtual panel discussions to assess the findings, their meaningfulness and possible impact. Furthermore, these discussions will determine whether or not to disseminate the narratives and if so, in what form.

Contributors may decide to form a focus group and conduct additional, in-depth research on this topic. Alternatively, they may simply gather in a virtual round table to discuss relevant points of interest.

The resulting material may be used as the basis for future developments, to formulate and suggest possible interventions, and to disseminate the narratives as a publication or in a series of panel discussions.

Responses to all questions are required (N/A is OK).

Although respondents enter their email as the sole identifier, responses are confidential and anonymized (ie, your story will be attached not to your name but to a pseudonym of your choice) and will be collected in a google form shared with participants. No person data is collected or shared.

This narrative collection project seeks exemption from IBR clearance  on the basis that the project conforms to the definition of Auto-Ethnography [1]. However, future, more in-depth research protocols may be submitted for approval if the project evolves, based on the requirements of collaborating institutions, if any.

Thank you for your input and cooperation. Your questions and feedback are welcome anytime during this process (contact: content-wire@gmail.com).

If you prefer, you can also send your responses via email.


DECLARATION OF CONSENT

By entering responses in this form respondents hereby imply consent to store them in the cloud space (Google Docs) for the purposes consistent with this description section.
No person information that can identify individuals is solicited/required/entered. Respondents will be given access to each other answers (except email addresses) and will be invited to collaborate on the discussion, elaboration, analysis and dissemination of the responses.

[1] Auto-ethnography: An Overview
Carolyn Ellis, Tony E. Adams & Arthur P. Bochn
https://www.qualitative-research.net/index.php/fqs/article/download/1589/3096/



Sign in to Google to save your progress. Learn more
Some demographics about the respondent (replies are confidential).  Gender, age or age group, profession if any, field of scholarship *
What is your interest in Neurodiversity *does it apply to you, to some people you know, or is it a research interest? *
Please give your choice of definition for neurodiversity, with the source *
Please provide the definitions/terms/concepts that you associate or relate to the definition of neurodiversity. For example,  how do you relate the concept of neurodiversity with  Asperger syndrome or other similar condition? In what way? are these conditions equivalent or somewhat similar? Describe briefly *
Do you consider Neurodiversity perceived, or actual? Discuss briefly *
Have you or the people you know who define themselves as neurodiverse, been diagnosed?  If so, give some details about the diagnosis protocol and institution you are familiar with *
To the best of your knowledge, is neurodiversity visible in a brain scan, or is it solely a cognitive /behavioral trait? *
Parents normally observe traits in their childre that they may interpret as evidence for neurodiversity, In the case of adults, can individuals observe neurodiversity only in themselves, or can  individuals identify other adults with neurodiversity based on their interaction with them? (in other words: adults may think of themselves as neurodiverse, but can they also think that other people they interact may be neurodiverse?) *
What physical or cognitive/behavioral traits are associated with the neurodiversity observations of the respondent? *
How does  neurodiversity impact school, learning, social relations, career, health and other fields based on your experience? *
How does  neurodiversity impact school, learning, social relations, career, health and other fields based on your experience? [[This item duplicates the previous item]] *
What provisions should be in place to accommodate for these traits in school/education, workplace, and in society in general? *
Do you consent your responses to be shared as a publication or public narrative/panel anonymously/under pseudonym [[ask an attorney to check this -- I canʼt RF Ed.] *
If you have a story to tell, about your experience with Neurodiversity in yourself or others, share it here *or enter a link to it *
Do you have any further observations and/or comments on this subject?
Submit
Clear form
Never submit passwords through Google Forms.
This content is neither created nor endorsed by Google. Report Abuse - Terms of Service - Privacy Policy
Google Forms