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Patient Stories
Thank you for considering sharing your personal patient story with the RRP community.
By participating in this video project, you'll be helping to raise awareness around
RUNX1
-FPD, foster better understanding of living with a rare disease and support others navigating similar challenges.
Please fill out this form if you're interested in collaborating with us to create a video that shares your unique story. A member of our team will reach out to discuss the next steps.
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First Name
*
Your answer
Last Name
*
Your answer
Email
*
Your answer
Location (
City, State/Province/Country)
Your answer
What is your main relationship to RUNX1-FPD?
RUNX1-FPD Patient
RUNX1-FPD Caregiver
RUNX1-FPD Family Member
Other:
Clear selection
Are you comfortable with your story being shared publicly on platforms such as social media, websites, and at events?
Yes
No
Other:
Clear selection
Do you have any questions or concerns about participating in this video project?
Your answer
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