DOWN SYNDROME MENSTRUATION SURVEY

In regard to menstrual cycle in individuals with Down syndrome, several studies have shown that there is no significant difference in terms of fertility, age of menarche, cycle length or days of flow compared to their normal peers (Goldstein 1988; Atkinson et al., 2003).

Although there is social stigma towards Down syndrome individuals in which people consider them handicapped and have a lot of problems to deal with, these special children have normal physiological changes. They pass through menarche at the same time, and it is natural for them to menstruate regularly (Atkinson et al., 2003). 

The issues of difficulties in handling menstrual hygiene, premenstrual disorders and the risk of sexual abuse are often of major fear among the caregivers. This survey is to understand the needs and experiences better to design a Menstrual education module for down syndrome menstruators. 

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   Name of caregiver (if comfortable)
Name of individual with down syndrome (if comfortable)
Date of Birth
City
State
Your relationship with individual with down syndrome

 

Is the child already menstruating?
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If yes, at what age did they start?’

 

Would you categorise the periods as regular?
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Were any Down syndrome focused puberty and menstruation awareness session attended by you?
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What product for menstruation management are they most comfortable with?
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What has been your primary concerns regarding periods?
*
How independently is the individual able to manage their own periods

 *
Required
Before the start of periods, what symptoms do they experience? (PMS)
Do periods affect their daily activities?
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Does periods create school/college/work absenteeism?
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Have you ever felt worried thinking of their reaction during periods
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Do you think your child is Mentally and physically prepared on handling their periods
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Ever discussed with anybody regarding the preparation before their periods
*
Ever asked any doctor regarding how to handle their periods
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Ever been given any briefing about their periods and how to handle the periods.      
*
Are you Interested in getting more information regarding their specific menstrual care
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Have you introduced any medical procedure or pill for menstrual management?
 *
Any specific experience or teaching that has worked for you in menstruation management with your child?
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