Health Professionals expectations for PReS 2023
Dear Health Professional,

Welcome to this survey! Thank you for giving up your time to complete it.

The first questions are about you and your career. 
The second part are questions about your thoughts and ambitions for PReS and the Health Professionals (HP) Community, which we call ComPaS (Community of Practice and Science of HP).

This feedback will be used to guide the building of the Community of Practice and Science of HP within PReS on the congress in Rotterdam 2023. We will use some of this data to make an updated membership list of our ComPaS group.

If you are not already, please do consider becoming a PReS HP Member. For only 30 euro's a year, you are part of the HP Community and privileges include being;
  • Part of the largest international Paediatric Rheumatology society, committed to PRES 2025 Mission and goals
  • Reduced fees at the PReS Annual Congress
  • Reduced publication fee for members in the Paediatric Rheumatology Journal
  • Access to PReS bursaries (e.g. travel grants, hardship bursaries, etc)
  • PReS E-newsletters
  • Networking : Through members’ information related to PReS congress, PReS 2025 Goals, PReS Working Parties 2.0 via online via website and social media
  • Members Area including resources area: disease specific recommendations/criteria, information on ongoing projects/studies
  • Access to courses and online video material 
To become a PReS HP Member you can use this form instead of a CV.
You will receive a pdf copy which you can use to upload on the PReS website when you subscribe for membership.

Thanks very much for your time,

Jeannette Cappon,  Your current HP representative on the PReS Council 
Polly Livermore, New HP Chair for the PReS Council from Sept 2023 polly.livermore@ucl.ac.uk
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In which country do you work? *
What is your surname? *
What is your first name? *
Are you a PReS member? *
Is there a National society/working party in the field of Paediatric Rheumatology for Health Professionals in your country? *
Required
Are you a member of this National society/working party in the field of Paediatric Rheumatology for Health Professionals in your country? *
What is the name of the hospital of the institute where you work mainly? *
What is the address of the hospital of the institute where you work? If you work on more than one location write here the main job location
What is the name of the department where you work? *
What is your profession or discipline?  *
Required
What is your highest level of education?
What are your responsibilities and activities at your work at the moment? Please describe *
Which diagnosis do the children have at your work?
Always
Often
Sometimes
Rarely
Never
JIA
JDM
SLE
Chronic pain
Hypermobility/Ehlers Danlos
CRPS
Uveitis
Scleroderma
MCTD
Autoinflammatory Disease
Vasculitis
Sjogren
Other
Do you work with any other paediatric diseases?
Do you also work with adult patients with rheumatic conditions diagnosed as adults? (such as Rheumatoid Arthritis, Osteoarthritis...) *
How old are the patients you work with?
0-4 years
5-11 years
12-15 years
16-18 years
19- 25 years
>25 years
often
sometimes
never
What kind of care or treatment does your department offer? *
Required
How many years of work experience do you have as a health professional since qualifying? *
How many years of work experience with paediatric Rheumatic diseases do you have? *
Do you have experience with teaching or education or presentations either for patients or health professionals? Please describe *
Do you have experience with research? Please describe (Writing articles, PhD subject, collaboration in projects of other people, Evidence based practice approach in care) *
Do you have a specialty or interest? (For example, subject of your PhD, ultrasound, E-health, management, editorial) *
PReS Health Professionals in Paediatric Rheumatology - what does it mean to you?
This second part are questions about your thoughts and ambitions for PReS and the HP Community. PReS is interested in what way PReS can support the community of Health Professionals in Paediatric Rheumatology and the roles people want to have in that. This feedback will be used in a report and guide the building of the Community of Practice and Science of HP within PReS.
What are your main reasons to belong to PReS (if you are) and if not, what would make you want to become a PReS member? *
If applicable, what do you like about PReS? What are the positive aspects in your opinion?
If applicable, are there any aspects you don't like about PReS?
What do you think may be the 3 future opportunities for the Health Professionals of PReS?
What do you see as barriers for Health Professionals of PReS? *
There are always many tasks to deliver upon. It would be fabulous to have some more help. Are there any tasks which you might you consider helping with?
yes
no
Represent national HP society
Represent nurses
Represent physio's
Represent OT's
Represent sport scientists
Represent podiatrists
Represents psychologists
Clinical affairs (guidelines)
Research affairs
Educational affairs
Working Party JIA
Working Party JDM
Working Party SLE
Working Party Fitness
Working Party Pain/Fatigue
Young Investigators
Congress organisation
Practical help at meetings
Speaker
Deliver eduction
Review abstracts
Poster tour guide
Session chair
Secretary role
Treasurer role
Funding
Editorial
Marketing and communication
Excel specialist
Qualitative research by surveys
Photographer
Technical support
Design HP courses
Is the English language, a barrier for you to participate in PReS? *
No barrier at all
A big barrier
Is the congress fee a barrier for you to come to a PReS Congress? *
Not at all
Very much
Is getting study leave (or time off) from your organisation to attend meetings a problem? *
Not at all
Very much
Would you like to attend evening ZOOM meetings with other HP members to network/share ideas/learn and support each other?  *
Have you got any ideas of topics we could cover at future HP meetings?
Do you agree for your name, email, country and specialty, to be on a PReS member list for HP's? *
 Do you have any other comments or questions for the PReS Council? (we can ask on your behalf)
Thank you for your time!  Do you agree to use your answers anonymously in feedback reports to the PReS Council, PReS Members and in the Kick-off meeting in Rotterdam ?

Hope to see you in Rotterdam on the PReS Congres 2023
Notice that the HP Kick off meeting is pre congress: 28 September 12:30 - 16:15


Jeannette Cappon
Polly Livermore
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