Access to treatment for Spinal Muscular Atrophy
This survey is to collect data on who currently is accessing treatment and those who want treatment but currently have not accessed it. All responses will be anonymous and will help us in our fight to get access to treatment for all.
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What type SMA do you/your child have? *
What is your/your child's age?
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Are you/your child on Spinraza?
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Would you/your child like access to Risdiplam?
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If yes, why do you/your child want to switch treatments?
On a scale of 1-5 (1 being no, 5 being happy) would stopping the progression of SMA be a good result
No
Happy
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What abilities are you worried about losing if you/your child do/does not get treatment?
What expectations do you/your child have from treatment?
We have an extra set of questions that will greatly help us make our submissions to NICE more powerful. Would you be prepared to answer these? If YES please leave email address below. If NO please leave blank.
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